Long Covid Research Hub
Where patients and researchers can connect to co-create and share ongoing research into the long-term effects of COVID-19.
There is now a global commitment to enhance our scientific understanding of Long COVID, as well as improving the care, support, and treatment available to those affected.
We know that Long Covid is an illness made visible by patients and it is thanks to the voices of those affected, that this condition is getting the attention it deserves.
Which is why we have created this dedicated Long COVID research collaborator space, to ensure your voice continues to have ownership over how we carry out this research, and hopefully inform other research in this field too.
How to get involved: Post opportunities and content on this page
Are you carrying out research on Long COVID in the UK? Looking to connect with people who have lived experience of Long COVID? Do you have a story to share? Providing your work meets our overall guidelines, you may be eligible to post an opportunity on this page for people to take part in or else a blog, video or news article to share. To learn more please email us at voice@imperial.ac.uk
Contact us
The Long COVID Research Hub is managed by the Patient Experience Research Centre (PERC) at at Imperial College London, in collaboration with VOICE Global and Newcastle University.
- If you are a researcher involved in Long COVID research and would like the VOICE community to support your work, please email voice@imperial.ac.uk.
- If you have specific questions about the public engagement and involvement activity relating to the REACT-Long COVID study, please email publicinvolvement@imperial.ac.uk
- If you would like to get in touch with the REACT-Long COVID study team at Imperial College London to ask any queries about the research itself, share your experiences or put forward an idea, please email: patientexperience@imperial.ac.uk
Further information
- To find out more about the REACT-Long COVID research study, including answers to frequently asked questions, please visit: https://www.imperial.ac.uk/patient-experience-research-centre/covid-19/covid-19-research/react-long-covid/
- Recommended patient support groups to meet and talk with others affected by Long COVID include:
- Long COVID Support Group on Facebook at: https://www.facebook.com/groups/longcovid/
- Long COVID SOS at: https://www.longcovidsos.org/
- Body Politic COVID-19 Support Group at: https://www.wearebodypolitic.com/covid19
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News Show all (11)
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Long Covid Research Hub • 7 Aug 2023
Maintaining the patient voice in Long COVID research Long COVID is a condition made visible by patients. It refers to a variety of ongoing or recurrent symptoms that people may e...Health & Wellbeing -
Long Covid Research Hub • 7 Aug 2023
Event Summary: Let’s Talk About Long COVID Research On Thursday 29th April 2021, the Patient Experience Research Centre held the Let’s Talk About Long COVID Research public even...Health & Wellbeing -
Long Covid Research Hub • 7 Aug 2023
Expert optimistic about possibility of tests for long COVID Professor Danny Altmann, from Imperial College London’s Department of Immunology and Inflammation, is one of the leading...Health & Wellbeing
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Long Covid Research Hub
Where patients and researchers can connect to co-create and share ongoing research into the long-term effects of COVID-19.
There is now a global commitment to enhance our scientific understanding of Long COVID, as well as improving the care, support, and treatment available to those affected.
We know that Long Covid is an illness made visible by patients and it is thanks to the voices of those affected, that this condition is getting the attention it deserves.
Which is why we have created this dedicated Long COVID research collaborator space, to ensure your voice continues to have ownership over how we carry out this research, and hopefully inform other research in this field too.
The Long COVID Research Hub is managed by the Patient Experience Research Centre (PERC) at at Imperial College London, in collaboration with VOICE Global and Newcastle University.
- If you have specific questions about the public engagement and involvement activity relating to the REACT-Long COVID study, please email publicinvolvement@imperial.ac.uk
- If you are a researcher involved in Long COVID research and would like the VOICE community to support your work, please download and complete the submission request form and email to voice@imperial.ac.uk. We would like the Long COVID Research Hub to also support and influence other national and ethically approved Long COVID research studies, where possible, so we are open to requests, which will be reviewed on a case-by-case basis.
- If you would like to get in touch with the REACT-Long COVID study team at Imperial College London to ask any queries about the research itself, share your experiences or put forward an idea, please email: patientexperience@imperial.ac.uk
Further information about Long COVID research and support
- To find out more about the REACT-Long COVID research study, including answers to frequently asked questions, please visit: https://react-lc.net [page still in development]
- Recommended patient support groups to meet and talk with others affected by Long COVID include:
- Long COVID Support Group on Facebook at: https://www.facebook.com/groups/longcovid/
- Long COVID SOS at: https://www.longcovidsos.org/
- Body Politic COVID-19 Support Group at: https://www.wearebodypolitic.com/covid19
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Long Covid Research Hub
Long COVID Hub Administrator