This is an opportunity to take part in a focus group to share your opinions on sharing participant data at the end of a research study.
When participants take part in a research study, they are asked to sign a consent form. The consent form asks the participant if it is OK to use their data in that research study, and sometimes if it is OK to share the data with other researchers at the end of the study.
The aim of this study is to find out how members of the public or people who might have taken part in research feel about what researchers do with their data at the end of the study and to understand how participants might feel about researchers sharing their data with other researchers.
The results of the study will be used to inform future research by the same researchers. The findings will be used to develop a questionnaire about data sharing, which will be sent to a larger sample of people.
This work will help to identify attitudes towards data sharing, which in future could ensure that participants’ views are taken into account when studies are conducted and data are collected and stored.
Participants must be aged 18 or over.
You will be asked to attend a focus group where you will be given background information on the project and then take part in a discussion about data sharing.
The focus group is expected to last between 1 and 2 hours.
The focus group will be recorded for transcription, with the recording deleted once this has been done.
The focus group will take place on 27th October 2017, 11:00-13:00 at Newcastle University Medical School.
Light refreshments will be provided and travel expenses will be reimbursed.